Redefining The Words “Psych Ward”

Redefining The Words “Psych Ward”

***TRIGGER WARNING (PTSD, OCD, SI) ***

I was brought down to the unit from the ER. I can only describe the feeling I had like a ‘walk of shame’. I felt the stares glued to the back of my head as I made my way to the elevator. I was wearing the infamous terracotta colored scrubs with the matching bright yellow hospital socks. The hardest part of it all was making eye contact with my coworkers as I made my way from the triage room to the elevators. I was accompanied by a crisis nurse and a security guard. I wanted to make excuses for myself so that they wouldn’t take pity on me. Regardless of how I felt, I knew I needed the help, so I swallowed my pride and let the professionals take over.

DAY 1- I was stripped of my personal items. No phone, lip balm, wallet, or even drawstrings allowed. My bed was a wooden box with a small mattress dressed with thin hospital linen. There was a desk with rounded edges and a what it looked like a robust plastic chair with no legs. There was a window but it was sealed shut. I felt ashamed of being there. Was I making it all up for attention? Deep down I knew I wasn’t but the thought was still there. I met with the psychiatrist that morning and was officially diagnosed with PTSD, ODC, and severe sleep deprivation. I was given medication that morning to help me sleep and to battle my PTSD. For once since Lilly’s birth my mind was quiet. I had lunch and fell asleep.

DAY 2- I had no idea that psych wards had a scheduled program or any type of structure whatsoever. In my uneducated mind, I was convinced crazy people just let their minds wander in a zombie-like manner, and occasionally lashed out in a manic state. I was so very wrong about it all.  I had already missed the morning vital signs, the check in group, breakfast, the free hour, the counseling/meditation group, and the creative time. I slept for nearly 24 hours.

I woke up to natural light and the sound of the nurse coming in to check on me as it was already almost night time. I was introduced to the other patients there and the rest  of the staff for the day. They were so heartwarming and welcoming. I attended the night time check in group, had dinner, my meds, a shower, and fell back asleep for the night.  I didn’t dream once.

DAY 3- I got up with a little pep in my step, it was a refreshing change. I got ready for the day, attended all my groups and even had a chance to play the piano for some of the patients ( I have no idea how to play but i can figure out simple chords). We had a movie night and I got to paint and meditate. Before the end of the day I met with my treatment team and decided that I was fit to go back home the following day.

DAY 4- It was dishcarge day and I was so excited to see Lilly and Spencer. At the same time, I was a little sad to leave such a healing place, knowing I would have to go back to the regular day to day tasks. It felt terrifying. As the time approached, I got more and more anxious. Once I was able to exit the building and I saw my family, all the worries melted away. She had grown so much in four days! Her little ankles had the smallest chub and her cheeks had grown to the size of two juicy peaches. My husband’s face was that of relief and concern for me. I am thankful for the amazing man I picked to be my partner. His support and love have always been unconditional.

I can’t say that I don’t get excited when someone makes a comment on the topic of mental health institutions, especially after my experience. It has become a chance to educate people, share my truth, break the stigma that comes from talking about seeking mental health help, and  also a chance to change the actual image of what people imagine when they hear the words psych ward. This very lenghty story might not ever reach the people that have the ability to change the culture around this topic, but I hope it helps someone in need to make the decision to seek help.

Transitioning to the ICN-Week 8

Transitioning to the ICN-Week 8

Everyday before leaving for the night, Spencer and I would sing this song to Lilly…

” You are our sunshine, our only sunshine.

You make us happy, when skies are gray.

You’ll never know Lilly, how much we love you,

Please don’t take our sunshine away “

Then we would give her a kiss and head out with a heavy heart to our hotel room. At first this was sad and frustrating, but then it became comforting. We had a routine, some sort of structure. well… Lilly had different plans.

The nurse taking care of her a couple of days ago, called us to let us know that Lilly was considered stable enough to be transitioned over to the Intermediate Care Nursery. The what?! Believe me you when I tell you that I didn’t know either. I thought the NICU was the only thing this hospital offered. I am happy I was wrong.

Spencer and I rushed over in the morning to see our little bug and we got a tour of the unit where Lilly was going to be at. “This is the unit where we have the healthiest babies that are closer to going home” said our nurse. We were so very excited to hear those words. We helped the nurse pack the room and we brought her over to her new little corner!

Leaving her room in the NICU
Her new spot at the ICN

This week she gained weight and hit the 6lbs mark! She also got longer at 46 cm and her long beautiful eyelashes are coming in. She looks like a doll. At the same time, Lilly is struggling with learning how to eat without any sort of events ( meaning she chokes on her milk and she desats and has bradycardia), which makes it a little bit hard for her to go home.

Sometimes it can be hurtful and discouraging when people ask us the dreaded questions “When is she coming home? is she home already? do you guys know when she will be coming home yet?”. As much as you think you want her to go home, believe us that we do even more. Our hearts ache when we walk in and see her there in her hospital crib just working so hard on the simplest of things, knowing full well that it might be a while before we get to snuggle her up in the comfort of our own home.

We are very thankful though, for everyone’s well wishes and the love and support we see everyday from people that have never even met our little one, but love us enough to love her too. We are beyond blessed for having you in our lives.

Wonnacott Photography
NICU Week 6

NICU Week 6

This past week started so very slow! Every minute in her hospital room seemed to stretch an hour long. She began with her CPAP going down and she started to be become more alert! Her eyes opened here and there, and she would react more to different sounds throughout the room.

Towards the end of this week, Lilly developed very fast. She gained weight and maintained her feeds through her OG tube (a tube that goes to her tummy and enters through her mouth). She is weighing 5lbs 7oz and she is now 17 in tall! She got rid of her CPAP and she graduated to regualr NEWBORN diapers!!

No more canula!

Here is a secret truth I learned as a NICU mom that will make you feel more confident and motherly as time passes by:

YOU ARE YOUR CHILD’S ADVOCATE. YOU ARE MOM. YOU ARE A SUPER HERO. YOU ARE IMPORTANT AND YOUR VOICE MATTERS!

Towards the end of this week, many wonderful changes happened to both Lilly and me, and the truth I just told you seemed very hard to believe. Here’s why…

Lilly started to breathe more on her own than without the help of any machine, so the doctor decided to take her off of her CPAP and she graduated to a canula (the plastic oxygen prongs that go into your nose) with room air. Those were wonderful news, right??? Well, my husband and I didn’t get to find out until we walked into the room and saw it ourselves.

You see, the NICU is a type of Intersive Care Unit and they have so many sick kiddos that they only really call parents when there is something wrong. As they like to put it “If I don’t call you, thats is a good thing”. The trudht of the matter is that MOST parents would like to know when something good is going to happen too! Secially when it is such a big step for our little one. We were a little upset.  This was not the first time we had come to her room to find out something big had happened and no one told us or mentioned it.

Being in the NICU sometimes makes you feel as if your baby wasn’t yours and you have no right to touch, speak, or even feel motherly towards YOUR baby. So if you are a parent that has ever felt this way, please go back and read the captioned sentence above over and over and over.

No matter what, we are so very proud of our baby girl.

Today she graduated out of her canula and her OG tube. No more barriers to brestfeed! She has an NG tube ( goes in through her nose and into her tummy) for feeds when she can’t take the breast. She passed her hearing test and she can finally get a good hold of her binky! Some of these achevements happened because she is a warrior, and some happened because her mami and papi spoke up for her when she needed it regardles of how insignificant and disconnected they felt.

Breastfeeding for the first time
NICU Week 3

NICU Week 3

The miracle week! Little did we know that we were going to be able to see so many advancements in such a little amount of time. We always said that we were not going to be too hopeful just in case things didn’t turn out good at all. This time, hope and excitement won the battle.

Every week for Lilly begins on Thursdays since she was born that day. At the beginning of this week, my husband and I were at home. It was around 5 A.M. and I had just pumped while my hubby was waking up for work, and we decided to call our little one at the NICU. Being far away from her can be emotionally draining, and calling to get some sort of report on how she did during the night gives us peace of mind and closure.

This call was a very special one. The nurse told us that our little girl had been regulating her temperature very well and the doctor deemed her ready to transition from the incubator to a hospital crib. My ears could not believe what I heard and my heart nearly exploded from how full it felt. The good news did not stop there though…

She was ready to wear regular clothes! Oh my! how much did I wish I could dress up my little cutie like a doll. My wishes are probably so silly to the regular mom that brings her baby home day one, but that call reminded me that wishes do come true.

My hubby and I made the effort to go and see her after he clocked out of work, and we spent the evening with her. We got to dress her for the first time, change her diaper, and provide the regualr care that she gets every three hours. We then got to hold her like a real baby. I know this must sound like I am crazy, but we had never had the chance to do so because she would get too cold.

My eyes were filled with tears and my body felt complete as I held my not so little one in my arms; She looked so much older than the last time I saw her.

Lilly has grown and surprised everyone that accidentally falls into her fan group, which is just about everyone. Specially her grandparents on my side of the family. My mother has been helping us since the day I went into labor, and my dad and sister joined us this week so as to help us during this recovery process. They helped us finish the nursery and set up a plan to easily transition into parenthood for when Lilly gets to come home. We are BLESSED indeed.

NICU Week 2

NICU Week 2

This was been a very rewarding week!

Our little Lilly did have some setbacks. She is still developing her little lungs and learning to breathe. Her breaths used to be so very fast, and they are finally going down and normalizing.

Besides her breathing, she has started to gain some weight and she is tolerating her feed a little more than before. We are hoping that she can regulate her body temperature as well which would mean her transitioning to a crib instead of being in the incubator.

She has developed such an interesting personality. Like any other baby, she shows signs of being upset when she has a dirty diaper, and has crazy legs when we are trying to change her.

Some of the other firsts that melted our hearts was the time at the end of the week where she started to use a tiny pacifier. My husband and I could not believe how big she looked compared to her first week!

It is still very weird to think that we have a baby. Unlike other parents, we don’t get to be with our baby every single day. After her visits, we go home and rest, but we go home without her. It seems like we are just borrowing the idea of being parents instead of actually being mom and dad.

Although I know that we are indeed parents to a perfect little angel, it is hard to shake the feeling of not belonging to that group. The group that gets to learn to become parents on the fly and by survival. The ones that connect to their baby right away. I hope that other NICU parents know that I feel it too. I am with you on this, and I don’t think I can fix the pain, but I can share it.

It Pours – ER #2

It Pours – ER #2

ER TRIP #2

August 12th 2020.

Shortly after being discharged from my first trip to the ER, I found myself under the same fluorescent lights.

Wednesday night the same week after Visit #1, I started to feel a little lethargic and moody again. My mom picked up my signs right away and asked me if I was okay. I brushed off her concern thinking she was just being a mom. Little did I know that mothers have a perfect gift. They know their children inside and out even if they haven’t seen them in a while. Mothers do know best.

I went to the bathroom after I felt like some blood had passed; a little too much for my current normal flow. I soon discovered something that scared me to my core. I had passed a very large blood clot. The postpartum nurses at the hospital told me to make sure that they clot wasn’t bright red. It wasn’t at first.

Withing 30 minutes, my body was having actual contractions and several bright red blood clots the size of my hand. I have pretty big hands. The terror settled in and I started to sob uncontrolably. I called in my mother and  my husband into the bathroom to make sure I wasn’t over reacting. Their reactions let me know it was serious. To the ER we went.

ONE HOUR in a bumpy car ride to the hospital was enought to physically drain me. Every clot that was about to pass felt like I was crowning. After checking in and being brought to triage, we finally got an exam room.

What happened next helped me understand why some women may be inclined to never had kids again.

The OB team of doctors showed up shortly after the nurse whose care I was in saw the size of the clots I was passing. She started an I.V. and drew my blood. I am pretty sure i’ve had about six I.V.s and one PICC line in the past three weeks.  The doctors did a couple more speculum vaginal exams and saw that I had necrotic left over tissue from when I gave birth.

Dialation and curettage with added sucction AKA torture:

Essentially, the doctors used a speculum to open up a canal through my cervix and to my uterus so that they could pull out any tissue with special instruments. You are awake, and no anesthesia is used. This procedure can be quick or it can be about two hours long. Luckily for me, I got the two hours long one.

After labored breathing and what it seemed like the beginning of a painful death, the doctor got the tissue out succesfully. I was relieved the procedure worked and we didn’t have to deal with the worst case scenario; a hysterectomy.

My body did what I didn’t think it could. The amount of pain I felt was beyond giving birth, breaking a bone, or anything I’ve ever felt. When my adrenaline started to fade away and my body started to feel all the after effects of it, it decided to give me a break by fainting. My amazing husband acted in a timely manner and helped me out as best as he could. I woke up to his beautiful eyes and I felt peace.

The discharge was quick, and the ride home painless. I am thankful for how far medicine and technology has come. It has saved my life.

Going throught this experience and knowing the posibilities of it happening again would traumatize even the strongest women. Would I have kids again? yes, yes I would.

To be honest, my husband and I had such desire to be pregnant and such a hard time conceiving, that I would go through as much as my body could take to be able to grow even more as a family. Our Lilly has been nothing short of amazing and the best blessing. Doing this and powering through for her has been a journey I will never forget. I have grown as a mother, daughter, wife, and human being. My limits have expanded and I’ve finally found my strength.