Redefining The Words “Psych Ward”

Redefining The Words “Psych Ward”

***TRIGGER WARNING (PTSD, OCD, SI) ***

I was brought down to the unit from the ER. I can only describe the feeling I had like a ‘walk of shame’. I felt the stares glued to the back of my head as I made my way to the elevator. I was wearing the infamous terracotta colored scrubs with the matching bright yellow hospital socks. The hardest part of it all was making eye contact with my coworkers as I made my way from the triage room to the elevators. I was accompanied by a crisis nurse and a security guard. I wanted to make excuses for myself so that they wouldn’t take pity on me. Regardless of how I felt, I knew I needed the help, so I swallowed my pride and let the professionals take over.

DAY 1- I was stripped of my personal items. No phone, lip balm, wallet, or even drawstrings allowed. My bed was a wooden box with a small mattress dressed with thin hospital linen. There was a desk with rounded edges and a what it looked like a robust plastic chair with no legs. There was a window but it was sealed shut. I felt ashamed of being there. Was I making it all up for attention? Deep down I knew I wasn’t but the thought was still there. I met with the psychiatrist that morning and was officially diagnosed with PTSD, ODC, and severe sleep deprivation. I was given medication that morning to help me sleep and to battle my PTSD. For once since Lilly’s birth my mind was quiet. I had lunch and fell asleep.

DAY 2- I had no idea that psych wards had a scheduled program or any type of structure whatsoever. In my uneducated mind, I was convinced crazy people just let their minds wander in a zombie-like manner, and occasionally lashed out in a manic state. I was so very wrong about it all.  I had already missed the morning vital signs, the check in group, breakfast, the free hour, the counseling/meditation group, and the creative time. I slept for nearly 24 hours.

I woke up to natural light and the sound of the nurse coming in to check on me as it was already almost night time. I was introduced to the other patients there and the rest  of the staff for the day. They were so heartwarming and welcoming. I attended the night time check in group, had dinner, my meds, a shower, and fell back asleep for the night.  I didn’t dream once.

DAY 3- I got up with a little pep in my step, it was a refreshing change. I got ready for the day, attended all my groups and even had a chance to play the piano for some of the patients ( I have no idea how to play but i can figure out simple chords). We had a movie night and I got to paint and meditate. Before the end of the day I met with my treatment team and decided that I was fit to go back home the following day.

DAY 4- It was dishcarge day and I was so excited to see Lilly and Spencer. At the same time, I was a little sad to leave such a healing place, knowing I would have to go back to the regular day to day tasks. It felt terrifying. As the time approached, I got more and more anxious. Once I was able to exit the building and I saw my family, all the worries melted away. She had grown so much in four days! Her little ankles had the smallest chub and her cheeks had grown to the size of two juicy peaches. My husband’s face was that of relief and concern for me. I am thankful for the amazing man I picked to be my partner. His support and love have always been unconditional.

I can’t say that I don’t get excited when someone makes a comment on the topic of mental health institutions, especially after my experience. It has become a chance to educate people, share my truth, break the stigma that comes from talking about seeking mental health help, and  also a chance to change the actual image of what people imagine when they hear the words psych ward. This very lenghty story might not ever reach the people that have the ability to change the culture around this topic, but I hope it helps someone in need to make the decision to seek help.

NICU Week 11-14 The Last Mile

NICU Week 11-14 The Last Mile

To be honest with all of you, the last four weeks of this journey were long and very short at the same time. It felt like our world went on for eternities but somehow we would find ourselves near the end of it time and time again. Like a marathon.

Lilly was growing so fast! She was gaining weight and hitting those regular developmental milestones quite fast. This seem to worry the doctors more than please them. They were noticing that Lilly was beginning to outgrow the NICU but there was something holding her back.

Spencer and I could NOT have seen this coming even if we tried. We had the idea that for some reason the NICU was the place for her to be “fixed”, and we were so wrong. Lilly reminded everyone in her care team that the neonatal intensive care unit could also be just a part of your treatment and not the entire process.

After many tests and therapy sessions, she was diagnosed with dysphagia and would need special care whenever she needed to eat. Technically, dysphagia is the inability to swallow without chocking. This means that her “feeds” had to be thickened in order for her to be able to eat safely. That also meant that breastfeeding was out of the question since breastmilk is so thin; thinner than water.

I was devastated. I always intended to breastfeed, especially since I was lucky enought to be blessed with an amazing milk supply. Pumping became my new religion.

Lilly’s feeding tube was also a topic for conversation and brainstorming on the provider’s part. They knew that she would have to go home with suplemental feeding and that the NICU was not very fond of sending babies home with anything but a “G Tube”, which is a surgically placed tube straight to the belly. Now, there are lots of other ideas that preceded the long feared G Tube, but the NICU providers were not very hopeful.

With the help of our great Speech team, who advocated perfectly for our little one, the neonatologists came to the conclusion that she was a good candidate to be discharged with an NG tube as long as she was seen outpatient by the same speech pathologists. Luckly, my husband and I have enough experience with medical matters and we felt so very comfortable taking care of her at home.

Lilly was discharged Nov 5th with a feeding tube that she had to use for only two weeks after she got home. With the help of her amazing speech team, her GI team, and the sweat and tears of her parents, she no longer needed her feeding tube and she graduated from therapy!!!!

NICU/ICN Week 9

NICU/ICN Week 9

This week we found out that our daughter had a low red blood cell count and needed some iron to help. This was kind of good news… here is what I mean by that.

Lilly has been very sleepy and lethargic. This makes it hard for her to actually work on feedings and learning how to eat like a newborn. In order for her to eat, she has to be awake/alert. Spencer and I were worried and communicated this to her doctors during rounds last week.

The doctors told us that it was very normal for her to be this sleepy given she was a preemie and “we are asking so much of them already” as the doctor put it. My motherly instinct told me that something else was happening and that we should ask again with more persistance.

The doctors decided to do a full blood panel and they found out that she had a low count which I believe came from me. I am anemic. Regardless, now we know what the problem is and how to fix it! Which brings me to our next achievement.

2 months old!

Lilly has been waking up a little bit more, enough to work on breastfeeding and bottle feeding! On Tuesday she tried breastfeeding and she was latched the entire time and she got milk! So she didn’t have to get any milk through her tube!

Today when Spencer and I arrived at her 11 am care, we found the nurse feeding her through the bottle and she was almost done! Spencer took over and Lilly and papi worked together and she finished her feed! her feeding has become a bit more mature and she is pacing herself. No events either!

We are making very small progress, but it is progress indeed. Lilly also has been gaining weight and she has grown in size! 6lbs 12.5oz of deliciousness! She almost looks like a newborn now and we are very much in love!!

To other parents with babies in the NICU: This week we also brought in some items that we had at home ready for her. A pillow to prevent flat head syndrome, her personal bibs, her boppy for nursing, and her receiving blankets to act as linens for her hospital crib.  **YOU CAN MAKE THE NICU YOUR HOME AWAY FROM HOME ** This has helped us feel like home is wherever she is and not just a stationary place that seems so distant and unachieveable.

YOU GOT THIS! Its not easy, but then again, nothing that is worthwhile is easy to build or find.

Our view from Lilly’s room.