Redefining The Words “Psych Ward”

Redefining The Words “Psych Ward”

***TRIGGER WARNING (PTSD, OCD, SI) ***

I was brought down to the unit from the ER. I can only describe the feeling I had like a ‘walk of shame’. I felt the stares glued to the back of my head as I made my way to the elevator. I was wearing the infamous terracotta colored scrubs with the matching bright yellow hospital socks. The hardest part of it all was making eye contact with my coworkers as I made my way from the triage room to the elevators. I was accompanied by a crisis nurse and a security guard. I wanted to make excuses for myself so that they wouldn’t take pity on me. Regardless of how I felt, I knew I needed the help, so I swallowed my pride and let the professionals take over.

DAY 1- I was stripped of my personal items. No phone, lip balm, wallet, or even drawstrings allowed. My bed was a wooden box with a small mattress dressed with thin hospital linen. There was a desk with rounded edges and a what it looked like a robust plastic chair with no legs. There was a window but it was sealed shut. I felt ashamed of being there. Was I making it all up for attention? Deep down I knew I wasn’t but the thought was still there. I met with the psychiatrist that morning and was officially diagnosed with PTSD, ODC, and severe sleep deprivation. I was given medication that morning to help me sleep and to battle my PTSD. For once since Lilly’s birth my mind was quiet. I had lunch and fell asleep.

DAY 2- I had no idea that psych wards had a scheduled program or any type of structure whatsoever. In my uneducated mind, I was convinced crazy people just let their minds wander in a zombie-like manner, and occasionally lashed out in a manic state. I was so very wrong about it all.  I had already missed the morning vital signs, the check in group, breakfast, the free hour, the counseling/meditation group, and the creative time. I slept for nearly 24 hours.

I woke up to natural light and the sound of the nurse coming in to check on me as it was already almost night time. I was introduced to the other patients there and the rest  of the staff for the day. They were so heartwarming and welcoming. I attended the night time check in group, had dinner, my meds, a shower, and fell back asleep for the night.  I didn’t dream once.

DAY 3- I got up with a little pep in my step, it was a refreshing change. I got ready for the day, attended all my groups and even had a chance to play the piano for some of the patients ( I have no idea how to play but i can figure out simple chords). We had a movie night and I got to paint and meditate. Before the end of the day I met with my treatment team and decided that I was fit to go back home the following day.

DAY 4- It was dishcarge day and I was so excited to see Lilly and Spencer. At the same time, I was a little sad to leave such a healing place, knowing I would have to go back to the regular day to day tasks. It felt terrifying. As the time approached, I got more and more anxious. Once I was able to exit the building and I saw my family, all the worries melted away. She had grown so much in four days! Her little ankles had the smallest chub and her cheeks had grown to the size of two juicy peaches. My husband’s face was that of relief and concern for me. I am thankful for the amazing man I picked to be my partner. His support and love have always been unconditional.

I can’t say that I don’t get excited when someone makes a comment on the topic of mental health institutions, especially after my experience. It has become a chance to educate people, share my truth, break the stigma that comes from talking about seeking mental health help, and  also a chance to change the actual image of what people imagine when they hear the words psych ward. This very lenghty story might not ever reach the people that have the ability to change the culture around this topic, but I hope it helps someone in need to make the decision to seek help.

NICU Week 11-14 The Last Mile

NICU Week 11-14 The Last Mile

To be honest with all of you, the last four weeks of this journey were long and very short at the same time. It felt like our world went on for eternities but somehow we would find ourselves near the end of it time and time again. Like a marathon.

Lilly was growing so fast! She was gaining weight and hitting those regular developmental milestones quite fast. This seem to worry the doctors more than please them. They were noticing that Lilly was beginning to outgrow the NICU but there was something holding her back.

Spencer and I could NOT have seen this coming even if we tried. We had the idea that for some reason the NICU was the place for her to be “fixed”, and we were so wrong. Lilly reminded everyone in her care team that the neonatal intensive care unit could also be just a part of your treatment and not the entire process.

After many tests and therapy sessions, she was diagnosed with dysphagia and would need special care whenever she needed to eat. Technically, dysphagia is the inability to swallow without chocking. This means that her “feeds” had to be thickened in order for her to be able to eat safely. That also meant that breastfeeding was out of the question since breastmilk is so thin; thinner than water.

I was devastated. I always intended to breastfeed, especially since I was lucky enought to be blessed with an amazing milk supply. Pumping became my new religion.

Lilly’s feeding tube was also a topic for conversation and brainstorming on the provider’s part. They knew that she would have to go home with suplemental feeding and that the NICU was not very fond of sending babies home with anything but a “G Tube”, which is a surgically placed tube straight to the belly. Now, there are lots of other ideas that preceded the long feared G Tube, but the NICU providers were not very hopeful.

With the help of our great Speech team, who advocated perfectly for our little one, the neonatologists came to the conclusion that she was a good candidate to be discharged with an NG tube as long as she was seen outpatient by the same speech pathologists. Luckly, my husband and I have enough experience with medical matters and we felt so very comfortable taking care of her at home.

Lilly was discharged Nov 5th with a feeding tube that she had to use for only two weeks after she got home. With the help of her amazing speech team, her GI team, and the sweat and tears of her parents, she no longer needed her feeding tube and she graduated from therapy!!!!

NICU/ICN Week 10

NICU/ICN Week 10

A gift from our amazing nurses

Oh the bittersweet week…

This week our sweet Lilly reached her due date. October 6th. A month ago, my husband and I thought that maybe our little baby girl would come home before this dreaded day.

When the day was getting close and she didn’t progress as fast as we wanted, we realized she would not be coming home yet. This realization was hard and heavy on our hearts. I was getting frustrated with “the system”. I was thinking maybe we were failing her.

They say that things get worse before they get better. Boy, are they right.

The ICN, as explained by the nurses, is a unit that is usually used as an overflow when they have too many babies to care for, and not enough space. When that census dropped, they decided to move those babies back to the NICU. This includes our little wiggle worm.

We packed our belongings and pushed her hospital crib all the way back to that long hallway. This time the room assigned to her is closer to the entrance so we don’t have to go through the dreaded hallway to get to her. It’s nice.

Lilly’s new room

Lilly has progressed in her eating technique; she has mastered the mature suck. She is able to suck, swallow, and breathe in a coordinated matter. She has been taking half of her feeds and has also been more alert in the past week.

Breastfeeding has been tough since my breast have developed faster than she has, making it difficult for her to receive such a big supply so fast. I am working with Lactation nurses to help Lilly latch and learn to manage my fast letdown and ample amount of milk.

She is gaining weight as espected and getting cuter by the minute.

Besides all the good things, there are some others that have kept us from going home. The biggest reason has been Lilly’s nutrition and learning to eat WITHOUT having events (i.e. choking/ coughing, desating, bradicardic dips). She has been having some more than usual, and it’s kept us from moving forward. We just have to keep working on it!

Until next week, keep on moving.. even if its only one inch at a time. Progress is progress.