Everyday before leaving for the night, Spencer and I would sing this song to Lilly…

” You are our sunshine, our only sunshine.

You make us happy, when skies are gray.

You’ll never know Lilly, how much we love you,

Please don’t take our sunshine away “

Then we would give her a kiss and head out with a heavy heart to our hotel room. At first this was sad and frustrating, but then it became comforting. We had a routine, some sort of structure. well… Lilly had different plans.

The nurse taking care of her a couple of days ago, called us to let us know that Lilly was considered stable enough to be transitioned over to the Intermediate Care Nursery. The what?! Believe me you when I tell you that I didn’t know either. I thought the NICU was the only thing this hospital offered. I am happy I was wrong.

Spencer and I rushed over in the morning to see our little bug and we got a tour of the unit where Lilly was going to be at. “This is the unit where we have the healthiest babies that are closer to going home” said our nurse. We were so very excited to hear those words. We helped the nurse pack the room and we brought her over to her new little corner!

This week she gained weight and hit the 6lbs mark! She also got longer at 46 cm and her long beautiful eyelashes are coming in. She looks like a doll. At the same time, Lilly is struggling with learning how to eat without any sort of events ( meaning she chokes on her milk and she desats and has bradycardia), which makes it a little bit hard for her to go home.

Sometimes it can be hurtful and discouraging when people ask us the dreaded questions “When is she coming home? is she home already? do you guys know when she will be coming home yet?”. As much as you think you want her to go home, believe us that we do even more. Our hearts ache when we walk in and see her there in her hospital crib just working so hard on the simplest of things, knowing full well that it might be a while before we get to snuggle her up in the comfort of our own home.

We are very thankful though, for everyone’s well wishes and the love and support we see everyday from people that have never even met our little one, but love us enough to love her too. We are beyond blessed for having you in our lives.